Rare Disease Day 2020

Hi everyone!

Once again we come to the last day of February- Rare Disease Day. This year it falls on February 29th, which is especially fitting.

Rare diseases/ disorders affect over 300 million people worldwide. In Canada, 1 in 12 is affected by a rare disorder. Each of these disorders is rare, but as a group they certainly aren’t. Three million Canadians are affected, and of course many more when you think about their loved ones and their support system. The Canadian Organization for Rare Disorders is a good place to start if you are trying to learn more about Canadian support and information.

Please check out my post from Rare Disease Day 2018, there is lots of good information on there about the movement, and some examples of rare diseases/ disorders.

I never thought I would be part of this club, and all I want is no new enrollment. Learning is the first step!

❤

Music Therapy Samples: Chase & Status feat. Kabaka Pyramid – Murder Music

Hey everyone.

I’ve posted about Kabaka Pyramid before, as part of the Green Lion Crew collective.

Kabaka Pyramid has quite the musical biography, and has performed internationally for years. He has quite the stage presence. Chase & Status are also legends in their genre. The artist link up for this jungle track is perfect.

Without further ado, I’d like to introduce Chase & Status feat. Kabaka Pyramid- Murder Music.

More Gymnastics

Hello everyone!

As you may know I’ve been watching a lot of gymnastics this year. USA’s National Championships just happened and there were some amazing moments. Please enjoy a few of my favourites.

—

Trinity Thomas’ floor routine- she hits a Biles, a move that only one gymnast (Simone Biles) has performed before in competition. Trinity is such an incredible performer, and she just flies across the floor. She currently competes in NCAA for the University of Florida. You can see the “Gator Chomp” in her routine.

—

Simone Biles made history. Twice. Actually, more than twice. On beam, Simone competed a double twisting double back dismount, and on floor she hit a triple twisting double tuck. That is a lot of groundbreaking flipping and twisting. Simone is the first woman to successfully compete these skills. She also won her 6th national all-around title, which blows some other record as well. Nice, Simone.

 

—

I really enjoyed watching Mykayla Skinner prove that a come back is possible, and she got me. Mykayla has been competing in the NCAA for 3 years, and only returned to elite training over two months ago. I’m sure there are people out there who know more than me on this topic, but I dare say this is the quickest elite comeback ever. Also the Instagram post about her and Simone being the grandmas of gymnastics and hitting double double bars dismounts is awesome.

—

There are a bunch of other amazing athletes that showed up this weekend. Donnell Whittenburg did some great work, and was rewarded by making the National Team.

—

Yul Moldauer had some great stuff, too. Check out this vault.

 

 

Anyway, just some moments that I enjoyed! I hope you enjoy them, too. These athletes are incredible, and the feats they pull off are legendary.

 

 

 

 

Canada’s Medical Cannabis Tax is Discriminatory to Patients #donttaxmedicine

Hi everybody.

It’s not just sensationalist clickbait, it’s really how I feel…

–

tl;dr: If you agree with my title, you can write to your MP and MLA with a pre-written statement in support of ending cannabis tax for medical patients HERE.

Carry on…

World Suicide Prevention Day

Hi everybody.

Today is World Suicide Prevention Day. Please try and understand how greatly this affects everyone. This is a difficult topic, but I think it really needs to be discussed. Please know that this could be a trigger for you if you are experiencing thoughts of suicide. I have put some resources before the “read more” tag in case you find yourself in this situation. There are even more resources at the bottom of this post. ❤

International Association for Suicide Prevention World Crisis Centres List

Canadian Suicide Prevention Resources List

National Suicide Prevention Hotline (USA) 1-800-273-8255

Music Therapy Samples: Kissy Sell Out

Hi everybody!

My music sample of the day is from Kissy Sell Out. An absolute legend of an artist I would love to see live. I had a couple opportunities to see him, and they slipped through my hands. One of those missed opportunities was at Ministry of Sound in London, for the Red Bull 3Style series. Whoops.

Perhaps in the future!

 

The Power of Visualization

Hey everyone!

Visualization is powerful. It’s a technique I learned in high school as a way to go over dance choreography for performances. Now I use visualization to keep my brain moving when my body isn’t sure it can follow.

I see myself dancing. I think about dancing, and how privileged I was to do it for years. I think about dancing in a desert landscape with nobody around except a massive sound rig on an art car. Sometimes people are there, but it’s not about other people. It’s about me dancing, feeling movement, and enjoying the hell out of it. Since I can listen to music as much as I want now, I can really transport myself somewhere else to dance. Visualizing myself dancing can be amazing, it can also get really sad all of a sudden. I believe I will do it again, but it’s hard to be patient when I can’t move the way I want unless it’s in my mind. It takes a lot of energy to force the sadness out when it interrupts my “dancing time,” but the more I force it out the less energy it will eventually take.

I’m grateful to have amazing memories to pull scenes from to complete my visualizations. Today the music is reggae and dancehall, and the scene is a Black Rock desert sunrise.

You are welcome to join me ❤

…

ART: Heartfullness by Katy Boynton

Cannabis and CRPS

Hello everyone.

I wanted to take some time to write about my experience with medical cannabis. My friends often ask me if I use cannabis for pain, and if it’s effective. So get ready for loads of thoughts, feelings, science, law, debate, and maybe even magic or something.

I’ve been writing this for a while, because there are many facets of cannabis. I have a lot of ideas, a lot of opinions, and there is a lot of new data available due to its changing status across the globe. Thanks for your patience!

*Disclaimer: Medical cannabis is legal where I live. I understand that in some places cannabis is illegal even if it is for medicinal purposes. I am truly sorry if the laws in your place of residence rule out cannabis as an option for you, and I hope for their amendment. The opinions expressed in this piece are my own and a direct result of my experiences. Cannabis is not an appropriate therapy for everyone. OK, carry on…

World MS Day

Hey everyone,

Today is World MS Day. Multiple sclerosis (MS) is an autoimmune disease that attacks the myelin sheath of the brain and spinal cord. The symptoms can vary wildly from patient to patient but can include dizziness, fatigue, vision loss, pain, coordination impairment, cognitive impairment, spasms, and a lot more.

Canada has the highest rate of MS in the world! Remember to be kind, because you never know what someone is dealing with. For 1 in 340 Canadians, that’s MS. This is another condition with no cure, and a clear need for consistent, effective treatments.

❤

Multiple Sclerosis Society of Canada

World MS Day

 

Phoenix Wheelie Adventure/ Accessibility Rant

Hi everyone,

I went on a big outing! When I was down in the Phoenix area last month, it was my goal to get out for some type of excursion. My mom and I chose the Desert Botanical Gardens, because we love the desert and they stated that it’s accessible. Please be prepared for a huge rant and a load of ideas…