Once again we come to the last day of February- Rare Disease Day. This year it falls on February 29th, which is especially fitting.
Rare diseases/ disorders affect over 300 million people worldwide. In Canada, 1 in 12 is affected by a rare disorder. Each of these disorders is rare, but as a group they certainly aren’t. Three million Canadians are affected, and of course many more when you think about their loved ones and their support system. The Canadian Organization for Rare Disorders is a good place to start if you are trying to learn more about Canadian support and information.
Please check out my post from Rare Disease Day 2018, there is lots of good information on there about the movement, and some examples of rare diseases/ disorders.
I never thought I would be part of this club, and all I want is no new enrollment. Learning is the first step!