Ten Albums That Changed My Life

Hi everyone!

Have you seen the tag all over social media lately where you name the 10 albums that changed your life? I wasn’t really thinking about doing it until I saw so much great music shared by my friends via that tag.

So without further ado and in no particular order…Read More »

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Fear: Flames & Flickers

Hi everyone,

I have been making progress lately, and it’s been really good! I still have fears for the future that range in intensity but luckily there’s hope as well…

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Ketamine Infusion Update

Hi everyone!

I recently went back to Arizona for the follow-up set of ketamine infusions, or “booster” infusions as they call them. The protocol was a 3.5 hour infusion, two days in a row. Once again, the team there made everything very easy and comfortable for me.

I’m happy to report that they are definitely helping! My baseline for pain has dropped about half a point, and I’m enjoying greater functionality! I’ve been able to do more standing, tolerate more stimulus, more vibrations, and less fear. I’ve realized along the way how much fear has played into living with CRPS. At least for me anyway. So to have more confidence and less fear is a wonderful feeling. I still have fear that I didn’t have before, so I’m not without fear by any means but I’m trying to work on that daily.

Being able to do more for myself has been very good for me. I am so grateful for my family for helping me the way they do, especially my mom, but making my own food again is awesome. I even (mostly) made family dinner the other night! The trend is up, and that feels good.

I’m also happy to report that the airport experience was overall excellent this time around, both going down and coming back. last time coming back was hell…you can read about it here. It’s no secret that the TSA messes up often. Actually “often” is putting it nicely according to recent press, they fail to detect weapons during undercover tests at least 70% of the time. I wasn’t able to find the report, as the TSA apparently keeps all their reports internal for security measures. A couple of years ago the failure rate was said to be 95%. The TSA did mess up with me again. It was awesome.

My mom and I were sent through to pre-check, which we did not have, and everything was over in about 7 minutes. I walked through an old school metal detector, had them put my cane through the scanner, inspected my wheelchair, and that was it. I was told my hands would be swabbed but nobody was ever called over to do that. It was so easy. I hope they think I have pre-check again, because that kind of mistake I like! I looked it up and pre-check would require me to be some sort of American resident or citizen, go to an enrollment centre to provide fingerprints, and then pay $85 for a 5-year membership. I definitely didn’t do any of those things, and I definitely do not qualify for it.

I hope I will get around to writing some blogs about what it was like, because that seems to be something a lot of people want to know. In short, if you have ever woken up from anesthesia it feels like that. The moment you wake up, and you are swimming and everything is weird. If you haven’t experienced that, I’m honestly not sure what is the easiest feeling to relate it to.

Thanks for your ongoing support, take care of yourselves. ❤

Zara

 

Links to information mentioned:

Ketamine Wellness Centers

Blog post on my experience last time

TSA 70% Failure Rate Article (Newsweek)

TSA 95% Failure Rate Article (NBC)

TSA Pre-Check Information

 

 

Accessible Kananaskis Adventure

Hello everyone!

I had the immense privilege of a 2 night trip into the Kananaskis with my father (Big Al), and the dogs recently. We stayed at the William Watson Lodge, an accessible way to experience Peter Lougheed Provincial Park. There are cabins, campsites, a hut, a trailer, over 20 kilometers of paved walking paths, and picnic sites. They are all accessible! I was able to go for one big wheel down a ramp to a lookout, and back up again. That was my main adventure but I will be back to the Lodge again for more…Read More »

The World We Live In

Once again, it’s been a while.

A few things are happening that contributed to my lack of posts in the last month or so.

It’s really two things: medication changes, and the state of the world today. I can’t be the only one who works through emotions on a daily basis, hearing about the lives of people across the globe. I am privileged in a plethora of ways. The vast majority of world issues do not affect me directly, I am very aware of my privileges in that sense. Unless you have a giant pair of horse blinders connected to rose coloured glasses, I think it’s impossible not to be overwhelmed by the world we live in…

*Warning: This is a very heavy post. Topics include war, suicide, violence, and oppression..* Read More »