Brace yourselves, because this one gets to be pretty real. There’s some lovely information about my dance history however, so I can put a warning when the gist of this is approaching. I’ll label it as, [OPTIMISTS! Duck out here!].
I have great hope for my future. I really do, so I hope nobody misinterprets me on this. I have just come to realize lately the type of ramifications of a chronic illness with no cure. There are treatments of course, that work for people at varying levels. I believe I will be able to get back to all the things I love, although they may be conditional…Read More »
I often think about the role privilege plays in these chronic diseases and conditions. I am very fortunate to be in a position where I can have my complete health as both a goal, and a 24/7 job. So, I thought I would take the time to count all of my privileges and reflect on some “what ifs” of where I would be without them…Read More »
To all of my wonderful nurses out there, Happy National Nursing Week!
From all the complex patients like myself, thank you for taking the extra time to realize brushing a line against our leg can deeply hurt us, thank you for offering me your sympathies about the sensations I feel, thank you for trying to distract me.
I have certainly had difficult times in health care settings, but for every nurse I met who was having too rough a day to rise to my challenges, there had to be at least two more willing and eager to accept it.
Thank you, Canadian Nurses. You have the most dangerous job, without recognition or thanks in many cases, and you still care for all of us. I can’t say it enough, thank you.
Especially to Andrea, a wonderful young nurse who made my last visit OK even though it wasn’t. She made my day when I told her I was dissociating from the ketamine. Andrea then looked at me, smiled, and said, “trippy!”
“Under such torments the temper changes, the most amiable become irritable, the bravest soldier becomes a coward, and the strongest man is scarcely less nervous than the most hysterical girl.”
-from Gunshot Wounds and other injuries of nerves (1864), by Mitchell, S. Weir, Moorehouse, George R., Keen, William W.
I am constantly shocked by people (read: medical professionals who claim to be familiar with the condition) who think CRPS has been described medically only recently. Dr. Silas Weir Mitchell, one of America’s first neurologists, first described the modern CRPS Type II as “causalgia”. He also described CRPS in the critical text Gunshot Wounds and other injuries of nerves, published in 1864 ad co-authored with George Moorehouse, and William Keen. This appears to be the first thorough description in medical texts. Just some food for thought.
So I had another one, maybe even two, of “That Day”. On Wednesday, April 27th, I was scheduled for my first lumbar sympathetic nerve block in Edmonton. The procedure was ultimately not carried out, and I am still disturbed by many aspects of That Day. Just more to add to my collection.
That Day was how I referred to finding out I had CRPS. So I guess now I refer to a select few of my most trying and exhausting days, whether mentally or physically, as That Day. Collectively I suppose they would be Those Days, but really it’s just a term. Sometimes I attach new terms to things I decide have taken on too negative of a connotation. I may even start calling them Radishes now. I think I like that better. Beautiful and crisp in their pure flavour, but biting and polarizing at the same time. Sure, a trying moment is now just a Radish…Read More »